I was browsing through YouTube, and I happened to come across an awesome documentary about an amazing person with a terrible disease—well to him, it isn't that terrible. Soulpancake beautifully captures Shane Burcaw's story on film. Shane is hilarious, seems really down to Earth, and will often times laugh about his disease because life is what you make of it. Life is too short to worry about things beyond your control. I highly encourage you guys to watch this if you haven't already. You'll be glad you did! :)
Shane has an awesome blog called Laughing At My Nightmare.
http://laughingatmynightmare.1000notes.com/
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